New survey aims to better understand support needs of people with pancreatic cancer
Thursday, 11 January 2018
Researchers at Oxford Brookes University are working with Pancreatic Cancer UK to undertake a UK-wide survey for patients affected by pancreatic cancer to determine the impact of the disease on their quality of life and whether the care and information they receive is sufficient to help them to manage this.
Pancreatic Cancer UK has commissioned Oxford Brookes University, in collaboration with Picker, an independent healthcare research charity, to conduct the survey.
Pancreatic Cancer UK says the survey is vital because not enough is known about the specific care needs of people diagnosed.
Anna Jewell, Director of Operations at Pancreatic Cancer UK, said: “Sadly, we have heard many times from people diagnosed that they haven’t had the support they need to help them cope with the impact of the disease on their daily lives. But without hearing from patients across the UK, the full picture is hidden from us”.
Patients will be asked about how they received their diagnosis, the treatments they have received, management of symptoms and side effects, as well as their thoughts on the written information they have been given and the attitudes of the medical professionals who have treated them.
We are very pleased to be leading this study to support the vital work of Pancreatic Cancer UK. The findings will provide a much better understanding of the support and information needs of people with pancreatic cancer, and will highlight where and how changes to the provision of supportive care may need to be made.Professor Eila Watson, Professor of Supportive Cancer Care at Oxford Brookes University
The new survey also aims to highlight specific areas where there are gaps in care or information, and areas which need improving, with the hope that support and information will then be developed and improved to better meet the needs of people with the disease.
Professor Eila Watson, Professor of Supportive Cancer Care at Oxford Brookes University said: “We are very pleased to be leading this study to support the vital work of Pancreatic Cancer UK. The findings will provide a much better understanding of the support and information needs of people with pancreatic cancer, and will highlight where and how changes to the provision of supportive care may need to be made."
Patients at a number of participating hospitals in the UK will be asked to complete the annoymous survey. Anyone with a diagnosis of pancreatic cancer can complete the survey, regardless of how long ago they were diagnosed.
The survey can also be completed online at https://tinyurl.com/2017pcuk and over the phone or a copy sent to you by calling 01865 208 108.
For more information about the survey visit www.pancreaticcancer.org.uk/supportneedssurvey