The Dyspnea Society is an international multidisciplinary community that aims to advance scientific knowledge of dyspnea (breathlessness) and its translation to clinical practice. The Dyspnea Society’s international scientific meeting serves an important role in addressing these aims by bringing together researchers, clinical professionals, and industry stakeholders with a shared interest in better understanding the complex and multifactorial symptom of dyspnea.
The Dyspnea Society’s 6th international scientific meeting is being hosted by Oxford Brookes University in Oxford, England UK on 14-16 July 2021.
We look forward to welcoming you to Dyspnea 2021 in Oxford!
Shakeeb Moosavi, Oxford Brookes University, Kyle Pattinson, University of Oxford, and Sara Booth, University of Cambridge
The programme will be updated in due course.
Scientific Programme Committee
Dyspnea 2021 Meeting Co-Chairs
- Shakeeb Moosavi, Oxford Brookes University
- Kyle Pattinson, University of Oxford
- Sara Booth, University of Cambridge
Dyspnea 2021 Scientific Program Committee Members
- Shakeeb Moosavi, Oxford Brookes University
- Kyle Pattinson, University of Oxford
- Sara Booth, University of Cambridge
- Marie Williams, University of South Australia
- Matthew Maddocks, King’s College London
- Capucine Morelot-Panzini, Hôpital Universitaire Pitié Salpêtrière
- Jane MacNaughton, Durham University
- Helen Walthall, Oxford Brookes University
- Omer Van den Bergh, University of Leuven
- Joanna Grogono, Oxford University Hospitals
- Ann Hutchinson, University of Hull
The speakers' information will be updated in due course.
Confirmed Keynote Speakers
Professor Havi Carel
Keynote lecture: The Experience of Breathlessness
Thursday 16 July 2020, 09:10-10:00
Havi Carel is Professor of Philosophy at the University of Bristol. She is a Wellcome Trust Senior Investigator, leading the Life of Breath project (2014-2020; www.lifeofbreath.org), which won the Health Humanities’ Inspiration Award 2018. She is the author of Phenomenology of Illness (2016), Illness (2008, 2013, 2018 shortlisted for the Wellcome Trust Book Prize), and of Life and Death in Freud and Heidegger (2006). She was voted by students as a ‘Best of Bristol’ lecturer in 2016. She previously held grants from the AHRC, British Academy and Leverhulme Trust ( http://www.bristol.ac.uk/school-of-arts/people/havi-h-carel/index.html).
Professor Omer Van Den Bergh
Keynote lecture: Symptom perception and the body: An experimental inquiry
Friday 17 July 2020, 09:10-10:00
Omer Van den Bergh obtained a Ph.D. in Psychology at the Laboratory of Experimental Psychology, University of Leuven (1986), followed a postdoc training at the NIMH Center for the Study of Attention and Emotion (Prof. Dr. P.J. Lang) at the University of Florida (1986) and a postgraduate training in cognitive behavior therapy. He is supervisor of the Flemish Association for Behavior Therapy. Since 1988, he teaches health psychology at the University of Leuven to students of psychology, medicine and physical education. He was associate editor of “Biological Psychology” between 1999 and 2015, and former president of the International Society for the Advancement of Respiratory Psychophysiology (ISARP). He is founder and was director of the Research Group on Health Psychology at the University of Leuven from 1998 till 2015, and co-founder of a spinoff company of the University of Leuven providing services to prevent stress and improve well-being in organisations. Since 2016, he is ombuds person of the KU Leuven, and emeritus professor since October 2018.
Omer Van den Bergh is expert in the broad area of the relationship between health and behaviour. Specific key words in his work are subjective health and respiratory psychophysiology in response to stress and aversive somatic experiences. He is especially inspired by learning psychology and symptom perception theory to investigate the links among these issues. The research involves both normal subjects in laboratory experiments, clinical studies on psychosomatic and pulmonary patients in the university hospital, and field studies on subjective health symptoms. He published over 300 papers and chapters in international journals and books. See https://www.kuleuven.be/wieiswie/en/person/00005032
Invited Speakers for Theme 1: Interventions and healthcare perspectives
Thursday 16 July 2020, 10:30-12:40
Dr DorAnne Donesky
It takes a village: Nursing contributions in care of the dyspnoeic patient
DorAnne Donesky, PhD, ANP-BC, ACHPN, is an adult nurse practitioner, professor at Touro University of California, and professor emerita at University of California, San Francisco. Her faculty practice is with the inpatient palliative care service at Queen of the Valley Medical Center in Napa, California. For two years, she was the lead clinician for an inter-professional outpatient pulmonary-focused palliative care service, the “Pulmonary Quality of Life Clinic” at UCSF. Dr. Donesky is the founding faculty and nurse lead for “Practice-PC,” a longitudinal inter-professional palliative care continuing education course for practicing clinicians. Clinically, she has over 25 years of experience in pulmonary symptom management and palliative care—supporting patients with chronic lung disease through clinic visits, pulmonary rehabilitation, clinical research, and Better Breathers support group facilitation. She was a Cambia Sojourns Scholar and a Macy Faculty Scholar in 2016-2018, and is a fellow of the American Thoracic Society.
Professor Claudia Bausewein PhD MD MSc
Breathlessness service - German perspective
Claudia Bausewein is Professor for Palliative Medicine and holds the Chair for Palliative Medicine at Ludwig-Maximilians-University Munich Germany. She is also Director of the Department of Palliative Medicine at Munich University Hospital. Her medical background is internal medicine but she has been dedicated to palliative care in Germany for more than 30 years.
Professor Bausewein has been involved in a variety of national and international activities in palliative medicine including the development of the German evidence and consensus-based guideline “Palliative Medicine for Patients with Incurable Cancer” and the EAPC Taskforce on outcome measurement in palliative care. She is currently Secretary of the German Association for Palliative Medicine and is a former Member of the Board of Directors of the European Association for Palliative Medicine. Her research focuses on breathlessness in advanced disease, complexity, outcome measurement, palliative sedation and palliative care in non-cancer patients. Claudia Bausewein has published more than 160 peer-reviewed articles, six books and a number of book chapters.
Associate Professor Marie Williams PhD, Grad Cert (Cardioresp Physio), B.App.Sc (Physio)
Explain Breathlessness – opportunities and unintended consequences
Associate Professor Marie T Williams is a physiotherapy academic, member of the Innovation, Implementation and Clinical Translation in Health (IIMPACT) research concentration, School of Health Sciences, University of South Australia. Marie is an active member of the TSANZ, Lung Foundation Australia, European Respiratory Society (ERS), Dyspnea Society and the Australian Physiotherapy Association (APA). Marie is an external reviewer for a range of respiratory medicine/ physiotherapy journals and international/national grant agencies. Marie is committed to the development of the next generation of allied health clinician researchers (19 PhD completions; currently supervising three Phd and three MRes). Her research interests include the evidence-based management of people with chronic breathlessness with particular reference whether (and how) the impact of this sensation can be substantially altered via exercise training, psychological approaches and education of people living with breathlessness and clinicians.
http://orcid.org/ 0000-0002-0473-5157, Researcher ID: C-8152-2009, Scopus ID -7410000969, Twitter -@OHHMarieT, Email: email@example.com
University homepage link = https://people.unisa.edu.au/marie.williams
Professor Capucine Morelot-Panzini, MD PhD
Capucine Morélot-Panzini is a Professor of Pulmonology at the Sorbonne University Medical School in Paris. Specialized in home ventilation and diaphragm pathologies, she heads a12-beds home ventilation unit in the Department of Respiratory Medicine of the Pitié-Salpétrière University Hospital (Paris). This day unit follows 800 patients, including 360 ALS patients on long term home ventilation.
From 2004 to 2006, she took a period of full-time research and studied the interactions between dyspnoea and pain showing that dyspnoea has nociceptive properties and shares neural features with pain.
After completing a postdoctoral fellowship in the Dyspnea Lab of Harvard Medical School (Boston), she has been leading the team of “Neurophysiological determinants of breathlessness and its treatment applications” in UMRS 1158 Inserm-Sorbonne University since 2012.
Invited Speakers for Theme 2: Mechanisms Highlights
Friday 16 July 2020, 10:30-12:40
Olivia Faull (Zurich)
The Bayesian Brain
Olivia holds a Marie Sklodowska-Curie Individual Fellowship (2018-2020). Olivia's research focusses on interoception and conscious perceptions of breathing. Having studied Neuroscience and Exercise Physiology as an Undergraduate at Otago University in New Zealand, Olivia moved to the UK to complete her DPhil at Oxford University. Her Doctoral Thesis used ultra-high field functional magnetic resonance imaging (fMRI) to consider targeted nuclei in the brainstem and cortex, which are thought to be key in breathing control and perception but had previously only been accessible in animal models.
Since moving to Zurich in 2018 as a Postdoctoral Researcher, Olivia is looking to apply predictive coding models to better understand how the brain perceives and learns about changes in our breathing. Furthermore, Olivia is interested in how learning and perceiving our bodily state may be altered with psychological traits such as anxiety, to better target these processes for greater treatment success in future therapies.
Professor Alexander L. Green FRCS(SN), MD, MB BS, BSc(hons)
Deep Brain Stimulation: A needle in the haystack
Alex Green is the Spalding Associate Professor at the University of Oxford, Nuffield Department of Surgical Sciences. He gained a degree in medicine from University College London in 1997, after having obtained a first-classhonours in Basic Medical Science with Neuroscience in 1994. His neurosurgical training started in London but the majority was in Oxford. From 2005-2007 he took a period of full-time research and investigated the autonomic effects of deep brain stimulation, concentrating on brain control of the cardiovascular system. This period of research produced a number of peer-reviewed publications in medical and scientific journals. He was also awarded a number of international prizes for his work, including the Congress of Neurological Surgeons (CNS) ‘Stereotactic and Functional Neurosurgery Resident Award’ in 2005 and the ‘Gordon Holmes Prize’ awarded by the Royal Society of Medicine. On returning to clinical training, he continued his interest in autonomic control and also pain, and became a National Institute of Health Research (NIHR) Academic Clinical Lecturer before becoming a consultant neurosurgeon in 2009. Soon after appointment, his work won him the prestigious International Neuromodulation Society (INS) ‘New Investigator Award’ for his work on heart rate variability and the autonomic effects of DBS. Whilst maintaining a busy practice of general adult neurosurgery, he specialises in ‘functional’ neurosurgery including DBS for movement disorders and pain. His research work continues to focus on pain and autonomic control including control of blood pressure, respiration and the bladder. He has published over 150 peer-reviewed articles, written two books and over 15 book chapters. He sits on a number of research trial committees including a data monitoring committee, steering committee and clinical advisory board. He is associate editor of the Annals of the Royal College of Surgeons.
Dr Matthew Maddocks (London)
Matthew is a specialist physiotherapist and Senior Lecturer in Health Services Research at the Cicely Saunders Institute, King’s College London. He is committed to developing rehabilitation strategies and services for people living with advanced disease. His research interests span palliative care, rehabilitation, exercise training, symptom management, and age-related syndromes including frailty, sarcopenia and cachexia. He has held National Institute of Health Research (NIHR) post-doctoral and clinical trials fellowships, and is currently an NIHR Career Development Fellow. Matthew has been involved in multiple national and international activities to increase allied health professions research and presence in palliative care, including as chair of the London Hub of the Council for Allied Health Professions Research. He has published over 100 peer-reviewed articles and a number of book chapters in key texts.
Mona Bafadhel, MBChB, FRCP, PhD
Associate Professor in Respiratory Medicine University of Oxford; Oxford, United Kingdom
Professor Mona Bafadhel, completed medical training at the University of Birmingham, followed by training at Birmingham Heartlands Hospital and The Royal Brompton Hospital. Mona is a clinical researcher, working in the Nuffield Department of Medicine as an Associate Professor in Respiratory Medicine at the University of Oxford and an Honorary Respiratory Consultant Physician at the Oxford University Hospitals NHS Foundation Trust. Her interests in Respiratory Medicine led to specialist training in the Oxford deanery and subsequently gaining a PhD at the University of Leicester studying biomarkers in exacerbations of chronic obstructive pulmonary disease (COPD). In 2019, Mona was awarded the prestigious Gaulstonian Lectureship from the Royal College of Physicians, London. She is the 4th woman in the awards 350-year-old history to have received this for excellence in the Clinical Sciences. Mona leads a group with research interests in the field of Airways Disease, particularly the investigation of the mechanisms underlying exacerbations of COPD. This has led to studying the role of the eosinophil in COPD, using statistical approaches to define particular sub-groups and to the delivery of therapeutic strategies to patients, working across the translational spectrum.
Chronic breathlessness infographic competition / collection
Ever struggled to find or create a great slide/image for a talk you have been asked to give about chronic breathlessness? Asked your colleagues and still can’t find one? Trainees /students seeking your advice on how to convey complex data? Well, help is at hand…
We are holding an infographics competition/collection at Dyspnea 2021 and we would welcome your entries. There will be prizes for the winners, but not only that, we will share with you all the infographics we collect so that we can all use these in our presentations and teaching!
Here is some more info on infographics and our competition / collection entry requirements:
An infographic is a visual representation of data to present an idea or concept as simply and with as little text as possible- the data derived image does the talking. Here are some examples although yours can be as simple as you like.
(With thanks to Dr Katherine Hubbard @KEHplantsci for her permission to use these examples.)
[~175-word count] Source: executivehm
[~90-word count] Designer Alberto Antoniazzi Source visual.ly
[~50-word count] Source: CDC
Infographics specific to chronic breathlessness are rare. Our breathlessness science community is multidisciplinary encompassing all aspects of breathlessness related interests from bench to bedside/backyard. Our community is creative, innovative, curious, talented and generous.
The intent of this infographic competition/collection is to:
- create an infographic library which will be made available (no cost) to the breathlessness community
- focus those interested in breathlessness on the care needed in giving information to fellow clinicians and users/carers
- build capacity and collegiality among our breathlessness science community
Individuals or teams are invited to submit infographics for the following topics:
- Prevalence: Prevalence and/or impact of chronic breathlessness
- Genesis: Genesis of chronic breathlessness (mechanisms, contributing factors)
- Management: Management of chronic breathlessness (pharma and non-pharmacologic evidence-based approaches, broad principles or specific strategies/interventions)
- Myths: Common chronic breathlessness ‘myths’ or misunderstandings (e.g proportion to disease severity, ‘just have to live with it’, supplemental oxygen will always help)
- Making the invisible visible: What does the experience of breathlessness feel like.
All submissions will be reviewed by four people (consumer representative and three members of the Dyspnea 2021 Scientific committee) to select a winner in each topic category and the overall best infographic.
Criteria for judging
- Design: visual appeal / engagement, economy of text (< 200 words)
- Quality of content: accuracy of data/information presented (low potential for misinterpretation)
- Universality (ability to be understood by people caring for or living with chronic breathlessness, health care practitioners and health administrators)
All submissions will be available for viewing in the Dyspnea 2021 Infographic Gallery. The ‘People’s Choice Award” will be assessed via public vote (voting link will be made available in the Infographic Gallery).
- Open to general public, health care professionals, researchers, trainees and students
- There is no limit of number of submissions an individual or team can make (separate application for each infographic submitted)
- The Dyspnea 2021 Scientific Committee reserve the right to decline submissions where concerns exist regarding content is misleading or inaccurate or copyright.
- Submission open 9 March 2020
- Submissions close 1 June 2021
- Infographic gallery opens 8 June 2021
- Best in topic category and Best in show announced Wednesday 14 July 2021
- Public voting for best infographic closes midday, 16 July 2021
- People’s Choice Award announced 16 July 2021 [Closing Dyspnea 2021].
- You might find it easiest to create your infographic using PowerPoint (and save the final version in the highest resolution - as JPEG or PNG).
- Infographics are intended for online dissemination. Dimensions differ between platforms. For your submission please use dimensions appropriate for Twitter (minimum: width x height = 600 x 335 pixels (10.583 cm x 5.909 cm); maximum 1,200 x 675 pixels (21.167 cm x 11.906 cm); Aspect ratio 16:9.
- To create the appropriate slide size in PowerPoint – go to Design - Slide Size -Custom Slide style – in the Width dialogue box type ’10.583 px’ or ‘1200 px’; in Height type ‘5.909 px’ or ‘675 px’ -then select ‘OK’ [PowerPoint will automatically correct pixels to cm].
- Language of text = English (or provide English language version for judging)
- Infographics should be data driven but data exist in a range of formats (numeric, text, images). Include attributions for data sources/references.
- Images must be correctly attributed and not subject to copyright ie. images must be available through creative commons [link to creative commons information sites], public domain, or created /produced by the author/s personally.
- Include authors/affiliation attribution (name, affiliation suitable for future acknowledgement)
Need some help or inspiration or alternatives to PowerPoint?
- Please submit a new application for each infographic.
- Format - JPEG or PNG
- Size- Maximum file 16MB
- File name – Author surnameFirst name intitial_Infographic topic category (e.g PittB_Myths). If you have multiple submissions in the same topic category, indicate using sequential numbers (e.g CumberbatchB_Invisible1, CumberbatchB_Invisible2 etc)
Submit your infographic. If you experience any issue with uploading your application please contact firstname.lastname@example.org
We will be having a number of exhibitions related to breathlessness at Dyspnea 2021 and here are some links to give you a taste of what you’ll be able to see there: