New survey aims to better understand support needs of people with pancreatic cancer

Thursday, 08 February 2018

Midwifery - Pancreatic Cancer Study - 070218

Two members of the Midwifery, Community and Public Health and OxINMAHR team have been commissioned to run a new study by Pancreatic Cancer UK.

Two members of the Midwifery, Community and Public Health and OxINMAHR team have been commissioned to run a new study by Pancreatic Cancer UK.

Professor Eila Watson and Dr Jo Brett will work in collaboration with Picker (an independent healthcare research charity) to undertake this UK-wide survey. The survey will measure the impact that pancreatic cancer has had on the quality of life of those affected. It will also assess whether the care and information they receive is sufficient to help them manage this.

Patients will be asked about how they received their diagnosis, about their treatments, and how symptoms and side effects were managed. They will also be asked for feedback on the information they were given and the attitude of medical professionals who treated them.

We are very pleased to be leading this study to support the vital work of Pancreatic Cancer UK. The findings will provide a much better understanding of the support and information needs of people with pancreatic cancer, and will highlight where and how changes to the provision of supportive care may need to be made.

Professor Eila Watson, Professor of Supportive Cancer Care at Oxford Brookes University


The new survey aims to highlight specific areas where there are gaps in care or information, and areas which need improving. It is hoped that this information can be used to improve support and to better meet the needs of people with the disease. The team have worked with patients and health professionals to develop the survey.

Pancreatic Cancer UK says the survey is vital because not enough is known about the specific care needs of people diagnosed.

Anna Jewell, Director of Operations at Pancreatic Cancer UK, said: “Sadly, we have heard many times from people diagnosed that they haven’t had the support they need to help them cope with the impact of the disease on their daily lives. But without hearing from patients across the UK, the full picture is hidden from us.”  

Professor Eila Watson, Professor of Supportive Cancer Care at Oxford Brookes University said: “We are very pleased to be leading this study to support the vital work of Pancreatic Cancer UK. The findings will provide a much  better understanding of the support and information needs of people with pancreatic cancer, and will highlight where and how changes to the provision of supportive care may need to be made."  

The study was launched in January. Patients at a number of hospitals across the UK will be asked to complete the anonymous survey. Anyone with a diagnosis of pancreatic cancer can take part, no matter how long ago they were diagnosed.  

The survey can also be completed online here and over the phone by calling 01865 208 108.  It is also possible to request a hard copy to be sent out by ringing this number.

For more information about the survey, click here.